Kristen’s Living Legacy

In by Kristen Larsen

"The pain, the fear, the sickness will be overwhelming at times, but never stop holding onto hope. Hold on tight, because life is worth it"
0.14% Raised
$1,400.00 donated of $1,000,000.00 goal
6 Donors

My name is Kristen Larsen and one day, Low-Grade Ovarian Cancer will take my life.

I was diagnosed at twenty-one years old, despite no family history, genetic mutations or risk factors.

Now twenty-seven, I have been in constant treatment the entire time and have almost exhausted all available options.

In my honour, please consider making a donation.

This is my Living Legacy- a way that I can make a difference while I am still here on this earth, and after I am no longer with you.

Cure Our Ovarian Cancer is my charity of choice, because all funds raised go directly to fund scientific research on my specific type of Ovarian Cancer.

I will continue to advocate, to use my voice to raise awareness and campaign for better outcomes, but I need your help to fund the research that could save my life and women like me.

 

Kristen’s Story

(Written by big sister, Elsa Larsen)

In 2013 at the age of 21, Kristen was living her dream of a working holiday in London when she was diagnosed with advanced, Stage 3C Ovarian Cancer.

The disease had spread well beyond Kristen’s womb, throughout her abdomen, riddled her large bowel and spread alongside her liver and up to her diaphragm.

This diagnosis came completely out of the blue. Kristen had no family history, and there were minimal symptoms leading up to her diagnosis (as is often the case with Ovarian Cancer, and no screening test).

Kristen endured an 11 hour “debulking” surgery which included a full hysterectomy, and removal of her entire large bowel giving her a permanent ileostomy stoma. This was paired with 6 rounds of aggressive chemotherapy. At that point, Kristen was declared NED “no evidence of disease”.  Despite being on “maintenance” treatment to try to prevent a recurrence, just 12 months later the cancer had come back.

Kristen has never been out of treatment.  Everything she has tried has either slowed, reduced or kept her tumours stable for periods of time before the cancer progressed again. Her body has endured various chemotherapies, clinical trials of targeted and immunotherapy agents, hormone therapies, 4 more surgeries and radiation.  She has just about exhausted all options.

From early on in her diagnosis, Kristen wanted to give back, speak up and make a difference. She launched herself into all things TEAL! Kristen has volunteered with charities in Australia, UK, Canada & USA. She blogged, she shared her story, she fundraised. Kristen has been an active public speaker; campaigned politically and addressed the prime minister and national leaders.  She has shared her story through TV and print media and has been the face of numerous charity and brand campaigns and fundraisers, which have collectively raised millions for cancer charities.  Kristen also played an integral role volunteering as the Queensland coordinator to bring the international Survivors Teaching Students educational program into Australian universities. In addition, Kristen won a nationwide competition, “Podquest” run by Nova Entertainment. She will soon be launching her own Podcast series, “Ovarshare” in which she interviews fellow survivors. Kristen was also recognised for these efforts as a QLD finalist in the 2019 Young Australian of the Year Awards.

Kristen has travelled to conferences, symposiums and other events across Australia and the US and loves nothing more than being with her Teal sisters and bringing the Ovarian Cancer community together.   There is so much more of this world to see, and Kristen’s passion for life has never been stronger.

Why– Cure Our Ovarian Cancer

I have dedicated my years here on this earth to raising awareness and funds for cancer research. I have benefited from clinical trials and drugs I would not otherwise have been able to access. I know there are more options out there, we just need to fund the research to make this happen.

Through sharing my story, these efforts have raised millions of dollars for cancer charities. While I continue to support their work, unfortunately this funding does not trickle down to where I need it most urgently. Women with Low-Grade Ovarian Cancer need disease specific research, and this is extremely difficult to compete for funding for.

Thanks to clinical trials I have had real success from drugs that were originally developed for other cancers- such as Avastin (Colon Cancer); and Arimidex/Aromasin/Femara (Breast Cancer). I have also tried other drugs such as immunotherapy that I otherwise would never have been able to access had it not been through a trial setting. These have all prolonged my life here on this earth. On the other hand, I have also not qualified for trials, simply because I have Low-Grade.

I know firsthand how crucial research is for survival. There are brilliant researchers out there who need the funding to test out their ideas.  Without the evidence we cannot know what will work or get government approvals. I am too quickly running out of options so your donation would mean everything to me.

Cure Our Ovarian Cancer was established by my friend Jane, who also personally knows how crucial, research specific funding will be for our survival. It is the only international charity which is solely funding scientific research specifically into my type of cancer, Low-Grade Ovarian Cancer.

I have chosen Cure Our Ovarian Cancer for all of my future fundraising while I am still standing here on this earth, and as a legacy that will live on in my honour.

Kristen Larsen woman with low-grade serous carcinoma in an elevator connected to an iv line Kristen in wheel chair with shaved head Kristen with sister Elsa in hospital kristen lying in a hospital bed

Stay updated on my Facebook Page: https://www.facebook.com/KristensLivingLegacy/ 

Thank you to Maria-Nella and Miranda from Zuccherino Cakes for hosting a morning-tea fundraiser. We can't thank you both enough. Kristen and Elsa xx

http://www.zuccherinocakes.com.au

  1. Julijana Trifunovic

    $50.00
    Doing my bit for Kristen Larsen's Living Legacy Appeal.
  2. Helen Kiriyama

    $30.00
    You have two very beautiful friends in the names of Maria-Nella and Miranda. You are a very inspirational young lady xxx
  3. Maria-Nella Di Mauro

    $200.00
    Miranda and I held a morning tea to help raise money for Kristens Living Legacy. Sending you lots of love always beautiful
  4. Lisa Wilkinson

    $100.00
  5. Alexandra Coppock

    $20.00
    I also have this cancer and it so good to hear of some more hopeful treatment.
  6. Jane Ludemann

    $1,000.00
    Love you Kristen. Your selflessness is truely inspiring. Thank you for all the work you've done with the cancer community and the work you continue to do for women with our cancer.
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