Kristens Living Legacy

In by Elsa Larsen

"The pain, the fear, the sickness will be overwhelming at times, but never stop holding onto hope. Hold on tight, because life is worth it"
5.19% Raised
$51,880.73 donated of $1,000,000.00 goal
150 Donors

“My name is Kristen Larsen and one day, Low-Grade Ovarian Cancer will take my life.

I was diagnosed at twenty-one years old, despite no family history, genetic mutations or risk factors. Now twenty-seven, I have been in constant treatment the entire time and have almost exhausted all available options.

This is my Living Legacy- so that my story may live on and continue to make a difference after I am no longer with you.

In my honour, please consider making a donation.

Cure Our Ovarian Cancer is my charity of choice, because 100% of donations go directly to fund scientific research on my sub-type of Ovarian Cancer.” – November 2019

 

Kristen’s Story (Written by big sister, Elsa Larsen)

In 2013 at the age of 21, Kristen was living her dream of a working holiday in London when she was diagnosed with advanced, Stage 3C Ovarian Cancer.

The disease had spread well beyond Kristen’s womb, throughout her abdomen, riddled her large bowel and spread alongside her liver and up to her diaphragm.

This diagnosis came completely out of the blue. Kristen had no family history and there were minimal symptoms leading up to her diagnosis (as is often the case with Ovarian Cancer, and no screening test).

Kristen endured an 11 hour “debulking” surgery which included a full hysterectomy, and removal of her entire large bowel giving her a permanent ileostomy stoma. This was paired with 6 rounds of aggressive chemotherapy. At that point, Kristen was declared NED “no evidence of disease”.  Despite being on “maintenance” treatment to try to prevent a recurrence, just 12 months later the cancer had come back.

Every treatment Kristen undertook either slowed, reduced or kept her tumours stable for periods of time before the cancer progressed again. Her body endured various chemotherapies, clinical trials of targeted and immunotherapy agents, hormone therapies, 4 more surgeries and radiation. However, each of these treatments brought Kristen more time on this earth, and she was so grateful to the research advancements that made this possible. Despite enduring these continuous medical treatments and surgeries, Kristen dedicated the remaining six years of her life to raising awareness and funds for ovarian cancer. Kristen wanted to give back, speak up and make a difference. She launched herself into all things TEAL!

Kristen shared her story with charities across Australia, the United Kingdom, Canada and the United States. Kristen spoke publicly at numerous events and conferences and was the face of many campaigns and fundraisers. She appeared across television, print, radio and online media, her story collectively raising millions of dollars benefiting cancer charities.

Kristen’s involvement with American and Canadian charities brought the American program Survivors Teaching Students (STS) to Australia, where she became the Brisbane Regional Coordinator. In 2018, Kristen’s submission for ‘Ovarshare’ won her the nation-wide podcast competition Podquest. Backed by Nova Entertainment, Kristen produced her own podcast – a six episode series where she shared stories of young women with ovarian cancer to raise awareness of the disease and its symptoms.

In 2018, Kristen also participated in political advocacy training in Washington D.C and spoke about her personal cancer fight, addressing political leaders at Capitol Hill and requesting more funding for ovarian cancer. At Ovarian Cancer Australia’s Annual Parliamentary Breakfast in February 2019, Kristen addressed Australia’s political leaders, including the Prime Minister, the Hon. Scott Morrison, the Health Minister, the Hon. Greg Hunt and the former leader of the Opposition, the Hon. Bill Shorten. Kristen was instrumental in gaining $35 million in government funding going towards ovarian cancer prevention, early detection, treatments and clinical trials.

Kristen’s extensive volunteer efforts were recognised as a Young Australian of the Year 2019 finalist for Queensland. In June 2020, Cancer Australia awarded Kristen posthumously as the Jeannie Ferris Recognition Award recipient.

Kristen Freya Larsen passed away on the 9th of December, 2019 at age 27.

Kristen’s wish was that her story could live on and continue to make a difference to ovarian cancer research, even after her death. Shortly before she died, Kristen established this fundraising page to inspire others to donate and continue fundraising in her honour.

Kristen’s legacy will continue to influence women and their families for years to come.

Why– Cure Our Ovarian Cancer

I have dedicated my years here on this earth to raising awareness and funds for cancer research. Women like me with Low-Grade Ovarian Cancer need disease specific research, and this is extremely difficult to compete for funding for. The reason I have chosen Cure Our Ovarian Cancer is because it is specifically dedicated to funding research into Low-Grade Ovarian Cancer. As a rarer sub-type of Ovarian Cancer, it is disproportionately funded, the survival rate is 15% and it mostly affects younger women like me. The funds raised will be administered through ANZGOG– the Australia New Zealand Gynaecological Oncology Group- the peak research and clinical trial organisation for Ovarian Cancer in Australia.

Please give generously to my Living Legacy while I am still standing here on this earth, and as a legacy that will live on in my honour.

Kristen Larsen woman with low-grade serous carcinoma in an elevator connected to an iv line Kristen in wheel chair with shaved head Kristen with sister Elsa in hospital kristen lying in a hospital bed

Stay updated on my Facebook Page: https://www.facebook.com/KristensLivingLegacy/

  1. Kristen’s 28th Birthday Legacy

    July 19th would have been Kristen's 28th birthday. Kristen wanted us to celebrate her life by funding research into her cancer so that others in the future will have more time and treatment options. Funds raised go to Kristen's Living Legacy total.
    $10,069.97 donated
  2. WADES BIG SHAVE

    The mo will go! Funds raised go to Kristen's Living Legacy total.
    $6,934.00 donated of $5,000.00 goal
  1. Helen Beeby

    $50.00
    I've just heard Kristen's friend, Fiona, speak about her brave cancer-battle and her meaningful story sharing while she lived. Also the need for vital health research and awareness-raising of this often-ignored disease, that still claims too many women's lives.
  2. Pam Soriano

    $20.00
  3. Donna Callaghan

    $100.00
    It is a tragedy to hear of young people getting cancer.
  4. Samantha Hakin

    $30.00
    In memory of my UK sister Zena our Princess Warrior who leaves behind a world of friends, family, her husband and five year old daughter Ellie, who she will live on through every day xxxx
  5. Jane Ludemann

    $30.00
  6. Bartley Bauer

    $50.00
    Your devotion to helping those that follow and making your too-short life even more meaningful is so inspiring.
  7. Louise Jackson

    $100.00
  8. Chrisanne Stamoulis

    $100.00
    Because my mother met Kristen several times during her own treatment and was deeply touched by her enthusiasm, positivity and kindness. Let's hope we find a cure soon to rid the world of ovarian cancer.
  9. Anonymous

    $30.00
  10. Lohnet Taylor-Johnston

    $50.00
    Sorry you passed from this horrible cancer. RIP. It's a cancer that needs much more help to eradicate. It's the quieter cancer!
  11. Amber Cavanagh

    $10.00
    Thinking of you all and I hope the million is raised soon. It’s a wonderful thing to do to help others now and in the future.
  12. Peter Bates

    $50.00
    I read your inspirational but sad story today in an article by Sarah Swain. I have two young daughters of my own and hope that my small donation helps towards fulfilling the $1m pledge to help cure Ovarian cancer. Keep up the great work. Peter
  13. Petra Skoien

    $50.00
  14. David Kelly

    $100.00
  15. Carmel Mary Kerwick

    $30.00
    In memory of Kristen's incredibly brave life and in admiration of her family who supported her.
  16. Anonymous

    $30.00
  17. Wendy Deem

    $100.00
    in memory of Kristen
  18. Caroline Lloyd

    $100.00
    A true inspiration, your legacy lives on xxxxxx
  19. Erin Draper

    $30.00
    I am donating in memory of my momma who lost her battle to low grade ovarian cancer at the age of 65.
  20. Tahlia Harris

    $50.00
    Happy birthday beautiful. Shine bright like you always do xx
  21. Jane Ludemann

    $30.00
    Miss you Kristen!
  22. Facebook Fundraiser Donations

    $9,169.97
  23. Anonymous

    $50.00
  24. Ruth Gordon

    $50.00
    Lots of love to you Elsa and parents xx
  25. Peter Eckel

    $100.00
    Miss you my dear girl. ?
  26. Anonymous

    $100.00
    In memory of Kristen, who worked tirelessly to raise awareness. And to the beautiful women in her life who continue to raise awareness of Kristen’s Legacy.
  27. Anonymous

    $100.00
  28. Cecile Hryhorczuk

    $30.00
    In memory of Kristen. For you, for me, for every woman affected by this disease.
  29. Elsa Larsen

    $100.00
    To my mum, on your first Mother's Day without Krissy. We love you.
  30. Anonymous

    $30.00
  31. Story Telling Unplugged Brisbane

    $25.00
  32. RACQ Marketing and Digital Team

    $133.00
    From the RACQ Marketing and Digital team xx
  33. Deirdre Blythe

    $100.00
    For all the young women like Kristen- and in recognition of her inspirational response to such profound adversity
  34. Karen Larsen

    $888.45
    Proceeds from Biosecurity Queensland & DAF raffle of "The Gentle Shire Horse" painting drawn 26/02/2020
  35. Lee Witchard

    $100.00
    On behalf of the kindness and generosity of Maria-nella and Zuccherino cakes!
  36. Renae Randle

    $22.00
  37. John Bell

    $100.00
    In memory of Kristen's wonderful life and contribution
  38. Fiona Stafford

    $7,312.00
    Proceeds from Ovarian Cancer Fundraiser - Trivia night at the Cherry Tree Hotel in Melbourne Feb 20, 2020.
  39. Anonymous

    $10,000.00
  40. Maria-Nella Di Mauro

    $1,460.00
    You're legacy will be continued my love xx
  41. Helen Innes

    $450.00
    Fundraising from 'Wade's big shave' and multiple members of the Innes family Christmas
  42. Anonymous

    $20.00
  43. Nicole Taylor

    $30.00
    I didn’t know Kristen personally, but saw her story over social media. She sounds like an amazing woman. Here’s to a better future for those with ovarian cancer.
  44. Gillian Maher

    $30.00
    I read Kristen's story through a fundraiser at work and was saddened that this silent disease had taken such a brave young women.
  45. Anonymous

    $20.00
  46. Jessie Ormond

    $50.00
  47. Anonymous

    $30.00
  48. Anonymous

    $10.00
  49. Sam Palmer

    $58.00
    I want to be the 20,000 breacher haha
  50. Anonymous

    $30.00
  51. Maria-Nella Di Mauro

    $375.00
    I promise, for as long as I can bake cupcakes; I will continue your legacy my love.
  52. Zena Dinesen

    $75.14
    Kristen, you did wonders with fund raising and awareness raising, and your legacy will live on even though you have gone.
  53. Ken Palmer

    $150.00
    In celebration of Kristen's wonderful work to find a cure for her disease for others.
  54. Anonymous

    $20.00
    Donating in memory of a beautiful young woman, Kristen Larsen.
  55. Michael and Etienne Green

    $100.00
    Dedicated to the memory of Kristen, a champion of this women's health issue and a true inspiration and hero in every sense of these words.
  56. John Pham

    $1,000.00
  57. Sarah Hammond

    $50.00
    The world was and will be a far better place having had beautiful people like Kristen in it albeit for too short a time!
  58. Juan Alvarez

    $30.00
  59. Ally Luscombe

    $170.00
    Proceeds from Frozen 2 Fundraiser December 2019
  60. Caroline Clancy

    $100.00
    On behalf of Trishy's Beginner Class, as their Christmas gift
  61. Elsa Larsen

    $2,200.00
    Proceeds from Frozen II Fundraiser Dec 2019
  62. Kirsten Phillip

    $20.00
    Kristen - Such an inspiration
  63. Katherine Norman

    $210.00
    For Kristen Larsen's Legacy, from Fiona Staffords colleagues at Arts Centre Melbounre: Cookie, Helen, Clare, Jessie, Dylan, Maree, Glen, Vicki, Jodie & Joanne
  64. Julijana Trifunovic

    $80.00
    In memory of Kristen. Will be remembered forever. x
  65. June Wallace

    $100.00
    To support Kristen's Living Legacy
  66. Breeda Peirce

    $300.00
    Scoil Ard Rince donation from Christmas concert.
  67. Judith Nagle

    $100.00
    Kristy, you were an inspiration and a goal kicker. May you be free of pain. Your legacy is incredible.
  68. Malcolm Letts

    $30.00
  69. Alisha Thomson

    $400.00
    You will continue to inspire me. I can't make it to say goodbye with your family and friends so I am donating my flights. I will be thinking of you and your loved ones tomorrow. I will keep working on the advocacy and fundraising, thank you for all your efforts.
  70. Judith Briscoe

    $100.00
    Love you always Krissy
  71. Anonymous

    $500.00
    Donating on behalf of Roche. With warm regards from all the team
  72. Gavin Taylor

    $20.00
  73. Sandra Croft

    $100.00
    In memory of Kristen Larsen, an inspirational and beautiful soul who worked tirelessly to help others.
  74. Shannon O'Brien

    $20.00
  75. Pam Dahlmann

    $100.00
    I lost my mom and maternal grandmother to this wretched disease. I will continue to raise awareness and use my voice to advocate for more ovarian cancer research funding in memory of them and Kristen. Too many good people have been lost! I love that we have a worldwide approach. #TeamTeal
  76. Jacqui Delphine

    $30.00
    In loving memory of KFL
  77. Abarca

    $75.00
    For Kristen and her family x
  78. Anonymous

    $50.00
  79. Colin McCririck

    $250.00
    Donating for Kristen's Living Legacy - Have known Kristen since high school & her amazing fighting spirit should inspire everyone to donate, especially to Research for Low Grade Ovarian Cancer. Hope this helps in some way!!
  80. Melanie Krestan

    $20.00
  81. Josh Appleby

    $50.00
    Great cause, great guy! Keep up the great stuff Wade. Love ya
  82. Anonymous

    $1,843.00
    THE BIG SHAVE FUNDRAISING EVENT
  83. Tim McGahan

    $120.00
    My sister Margie died of ovarian cancer this year
  84. Allison Gardner

    $100.00
    GREAT CAUSE WILL BE STRANGE TO SEE YOU CLEAN SHAVEN LOOK FORWARD TO IT.MAL@ALLISON
  85. Emma Wyatt

    $50.00
    Great work guys!
  86. Courtney Taylor

    $100.00
    Great mo, great cause.
  87. Robbie Brokenshire

    $50.00
  88. Shane Fagg

    $40.00
    In support of Wade Innes helping Kristen.
  89. Diana Chambers

    $50.00
    Support Wade.
  90. Pétala Cattini

    $20.00
    Have faith and stay strong ??
  91. Vitor Paes

    $10.00
    Love makes ourselves stronger and it’s very easy to share.
  92. Peter Evans

    $500.00
  93. Katrina McKenna

    $50.00
  94. Carmel McAllister

    $20.00
  95. Carmel McAllister

    $20.00
    As much as I hate to see Wade's Mo go - this worthy cause needs the money more than Wade needs his Mo! 🙂
  96. Craig Hurley

    $50.00
    Mo gone and a good cause - everyone wins!
  97. Lucy Sergi

    $100.00
  98. Nanci Sergi

    $100.00
  99. Wade Innes

    $971.00
    Thank you’re all the Priceless Bodies members and staff for your donations!
  100. Kerrie Sorensen

    $20.00
  101. Jennifer White

    $50.00
  102. Desi Carlos

    $50.00
    Champion!
  103. Arita Petavrakis

    $50.00
    ? ? ?
  104. Arlene Castle

    $100.00
    I am a big fan of a good Mo but on this occasion I will be okay with letting the Mo go
  105. Emma Vekar

    $50.00
    Good on you Wade!
  106. Anonymous

    $40.00
  107. Cheyne Jones

    $50.00
    I’m donating because I believe Wade will lose 15kg off his lifts without the stache and I need all the help I can get next year!
  108. Nerida Trappett

    $200.00
    Great cause and can’t wait too see the clean shaven Wade
  109. Anonymous

    $10.00
  110. Claire Kasinski

    $70.00
  111. Margaret Nowak

    $50.00
    Thank you Wade, what a great cause.
  112. Wendy Mahon

    $50.00
  113. Renee Davidson

    $50.00
    A great cause.
  114. Robert Lyon

    $50.00
  115. Claire McAllister

    $50.00
    I can barely remember what your face looks like. Been waiting 8 years for that disgusting thing to go
  116. Ele Ludemann

    $2,000.00
    With admiration and gratitude for all Kristen and Elsa are doing to raise funds for research into low grade serous ovarian cancer.
  117. Anthony Larsen

    $100.00
    Wade is a champion for this very important cause. I bet everyone is looking forward to seeing the hairy man stripped naked of his follicles.
  118. Will Evans

    $50.00
  119. Elsa's FB Birthday Fundraiser

    $1,498.17
  120. Katie Cawthorn

    $10.00
  121. Fiona Stafford

    $50.00
    Wish we could be there to see you enjoy the waxing!
  122. Emily Harris

    $20.00
  123. Bronwyn Price

    $500.00
  124. Jono Danaher

    $70.00
  125. Robert Cunningham

    $50.00
  126. Kate Reinhardt

    $50.00
  127. Natalie Lockey

    $50.00
    Im a day late to witness the mo go, wont get to say bye!! Great thing you're doing Wade ? Will be very strange to see you without the tash!!
  128. Hayley Cochrane

    $100.00
    Great thing you are doing! Go the Mo!!!!!!!!
  129. Liam O'Gorman

    $30.00
  130. Chris Dinsmore

    $40.00
  131. Chris Dinsmore

    $10.00
    blue room raffle
  132. Meloney Lee

    $5.00
    blueroomraffle
  133. Faith Lenton

    $10.00
    blueroom raffle
  134. Mikaela Hatte

    $5.00
    Blue Room Raffle
  135. Pamela Luscombe

    $10.00
    blueroom raffle
  136. Bejan Lohrasb

    $50.00
    Can’t wait to not have that thing ticking my face. Do it big boy!
  137. Mikaela Hatte

    $10.00
    LPDraffle
  138. Angelique Simon

    $50.00
  139. Hayley Nelson

    $10.00
    LPD Raffle. Keep fighting the good fight!! Xx
  140. Allan + Jacinta Hurley

    $100.00
  141. Anonymous

    $50.00
  142. BD S

    $50.00
  143. BD S

    $250.00
  144. Anonymous

    $10.00
  145. Anonymous

    $10.00
    LPD RAFFLE
  146. Eleanor Birch

    $50.00
    What is even under that Mo??
  147. Janette Innes

    $30.00
    LPD Raffle
  148. Cure Our Ovarian Cancer

    $50.00
    Great work supporting a wonderful cause!
  149. Margaret Nowak

    $30.00
    LPD Raffle
  150. Beryl Stewart

    $30.00
    Keep up the fight
  151. Chenea Evans

    $20.00
    On behalf of Elle, one of the best friends we are both lucky to have
  152. Cassie Gooderham

    $100.00
    LPD raffle x
  153. Mikaela Hatte

    $10.00
    LPD Raffle
  154. Anonymous

    $500.00
  155. Bridget Bazzo

    $50.00
  156. Courtney Taylor

    $100.00
    Sending lots of love and keeping you in my thoughts for the latest bout of treatment. You should be so proud of everything you and your teal warriors are achieving! Courtney in Canberra xoxo
  157. Carys Chainey

    $20.00
  158. Pamela Luscombe

    $10.00
    LPD RAFFLE 🙂
  159. Kerrie Sorensen

    $20.00
    LPD raffle xx
  160. Melissa Chai

    $50.00
  161. Donna O’Donoghue

    $100.00
  162. Mitchell Hauser

    $100.00
  163. Anonymous

    $55.00
  164. Anonymous

    $200.00
  165. Julijana Trifunovic

    $50.00
    Doing my bit for Kristen Larsen's Living Legacy Appeal.
  166. Helen Kiriyama

    $30.00
    You have two very beautiful friends in the names of Maria-Nella and Miranda. You are a very inspirational young lady xxx
  167. Maria-Nella Di Mauro

    $200.00
    Miranda and I held a morning tea to help raise money for Kristens Living Legacy. Sending you lots of love always beautiful
  168. Lisa Wilkinson

    $100.00
  169. Alexandra Coppock

    $30.00
    I also have this cancer and it so good to hear of some more hopeful treatment.
  170. Jane Ludemann

    $1,000.00
    Love you Kristen. Your selflessness is truely inspiring. Thank you for all the work you've done with the cancer community and the work you continue to do for women with our cancer.

Thank you to Maria-Nella and Miranda from Zuccherino Cakes for hosting a morning-tea fundraiser. We can't thank you both enough. Kristen and Elsa xx

http://www.zuccherinocakes.com.au