Below is a list of online resources for women with cancer:
Ovarian Cancer Information:
The National Comprehensive Cancer Network Guidelines
The National Comprehensive Cancer Network (NCCN) is an initiative of 28 leading cancer centers in the US. They produce a consensus guideline for Ovarian Cancer. In addition to explaining treatments, they use simple language to discuss diagnosis, staging and tests. As of April 2020 the 2017 booklet is the most recent version that includes low-grade serous carcinoma. If you’ve just been diagnosed, we think this is essential reading. Despite being developed for the US there is helpful information for everyone.
Read: 2017 NCCN Ovarian Cancer Patient Guidelines
Integrative Medicine Information
Memorial Sloan Kettering Cancer Center is the world’s oldest and largest cancer centre. Their Integrative Medicine online resource has expert advice and information on supplements, integrative medical treatments, and more. Did you read about a herbal supplement on the internet? Has a friend suggested a Mind-Body Therapy? Trying to sort fact from fiction? This is a good place for background reading before you talk to your cancer care team.
Go to: MSKCC’s Integrative Medicine Resource
Surgery Resources
Guides to preparation, debulking and recovery by Gynaecological Oncologist Dr Amander Fader
Second Opinion Pathology
Sometimes low-grade serous carcinoma can be tricky to diagnose. A correct diagnosis is crucial to determining the appropriate treatments. MD Anderson Cancer Center offer a Second Opinion Pathology Service on pathology samples sent from pathologists or clinicians outside the MD Anderson system.
Pod Casts
Living with Ovarian Cancer
Living with Ovarian Cancer is a podcast full of inspiring stories told by women or their loved ones, who have been affected by ovarian cancer. Each story is unique and told from the heart in their own words. Hosted by Diane Evanswood – a retired palliative care nurse specialist, living with advanced low-grade serous ovarian cancer.
Ovarshare
Ovarshare is a six episode series that shares the honest and sometimes heart-wrenching stories of survivors, those who have passed and their family and friends.
It is the final advocacy project of Kristen Larsen – an inspiring young woman with low-grade serous ovarian cancer. Kristen also talks to some of the medical professionals and charity sectors to gain insight into all aspects of ovarian cancer from the symptoms to dealing with a diagnosis, treatment and raising awareness and advocating for research funding.
World Ovarian Cancer Day
May 8th is World Ovarian Cancer Day. An initiative of the World Ovarian Cancer Coalition, it’s a day to globally raise our voices in solidarity in the fight against ovarian cancer.
Learn more about our World Ovarian Cancer Day campaign
Visit the official World Ovarian Cancer Day site
Cancer Organisations:
World Ovarian Cancer Coalition
The World Ovarian Cancer Coalition is a not-for-profit organization, formally established in 2016, working across the globe towards a world where every woman with ovarian cancer has the best chance of survival, and the best quality of life – wherever she may live.
Visit: the World Ovarian Cancer Coalition
Our Charity Partners
When Cure Our Ovarian Cancer was founded we asked low-grade serous cancer researchers to name the best organisations with an interest in low-grade serous cancer. We approached the organisations with a request to develop a way to donate directly to low-grade serous cancer research. They agreed. The details are promoted on Cure Our Ovarian Cancer’s main geographic websites. Below are the organisation’s websites.
Australia New Zealand Gynaecological Oncology Group (Australia)
BC Cancer Foundation (Canada)
Graci Foundation (NZ)
Memorial Sloan Kettering Cancer Center (US)
STAAR Ovarian Cancer Foundation (US)
The University of Edinburgh (UK)
The University of Texas MD Anderson Cancer Center (US)
Local Ovarian Cancer Organisations
The World Ovarian Cancer Coalition lists over 140 ovarian cancer organisations around the world (including Cure Our Ovarian Cancer).
Organisations offering practical support
Record Me Now – an app to leave lasting memories with your loved ones
Jokes4Miles.com – a cancer charity that collects jokes, not donations. For some lighthearted relief.
Australasia
Gather My Crew is a free online support platform that easily co-ordinates meals and support for family and friends in need.
North America
Cleaning For A Reason offer up to two free house cleans for women undergoing cancer treatment.
If you are flying to The University of Texas MD Anderson Cancer Center – Houston Ground Angels offer transportation free of charge between the airport and medical centers.
Harmony Hill Cancer Retreats
Gildas Club Cancer Support Community
First Descents (US) provides life-changing outdoor adventures for young adults (ages 18 – 39) impacted by cancer and other serious health conditions.
My Care Conversations (Alberta) is an app to record your doctor’s appointments.
Callanish (Vancouver) offers retreats run by a compassionate team of professionals, all with extensive experience supporting people with cancer. In addition to programs such as art therapy and counselling.
Patient Advocate Foundation (US) offer assistance to help access healthcare including help for co-pays
Pink Pearl (Canada) cancer support and retreats for young women.
WellSpring (Canada) provides a wide variety of supportive care programs and services, at no charge, to anyone living with cancer.
Goodrx.com (US) gathers current prices and discounts to help you find the lowest cost pharmacy for your prescriptions. GoodRx is 100% free. No personal information required.
Stepsthrough.org (US) provides free counselling for women with ovarian cancer
United Kingdom
Information on applying for a Medical Exemption Certificate for people with cancer which gives access to free NHS prescriptions
Healthlines
Australia
Ovarian Cancer Australia Helpline 1300 660 334
Health Direct (Health information and advice) 1 800 022 222
Beyond Blue (When you need to talk to someone) 1 300 22 4636
Canada
Healthline (Health advice and information) 811
Ontario Telehealth (Health advice and information) 1 866 797 0000
Canada Suicide Prevention Services (when you need to talk to someone) 1 833 456 4566
New Zealand
Healthline – 0800 611 116
Need to talk? Free call or text 1737 any time for support from a trained counsellor
Lifeline – 0800 543 354 (0800 LIFELINE) or free text 4357 (HELP)
United Kingdom
Ovacome (10-5, Monday-Friday, Tuesday until 8pm) call 0800 008 7054; or text 07427390504.
Target Ovarian Cancer (nurse led, 9-5:30, Monday to Friday) 020 7923 5475
Macmillan Cancer Support Line (Offering a listening ear, nurse advice and financial advice, 8am-8pm 7 days a week) 0808 808 00 00
Samaritans (when you need someone to talk to 24/7) 116 123
United States
Steps Through OC (free counselling, education and support for ovarian cancer patients) 1 866 830 5134
LIVESTRONG (cancer support Mon to Fri 12pm-4pm EST) 1 855 220 7777
National Suicide Prevention Lifeline (24/7 when you need to talk) 1 800 273 8255
Find a Therapist
The Association for Contextual Behavioural Therapy maintains an international list of therapists specialising in Acceptance and Commitment Therapy – learn more about the benefits of ACT therapy.
