Media Guide


Press release

Help low-grade serous ovarian cancer and Cure Our Ovarian Cancer get publicity by sharing our press release with the media.

Download our Press Release Template

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World Ovarian Cancer Day Press Release May 2020

Cure Our Ovarian Cancer, the world's only charitable organization solely focused on funding research for low-grade serous ovarian carcinoma, is celebrating World Ovarian Cancer Day on May 8, 2020, by helping women use their #PowerfulVoice to increase awareness of this disease and fundraising for research.

One in 70 women will be diagnosed with ovarian cancer in their lifetime and less than half will survive five years. Since 2018, COOC funding provides important research around the world for a rare strain of ovarian cancer that disproportionately affects young women. In-person events to support fundraising efforts have been canceled/postponed due to the current COVID-19 situation.

The COVID-19 global pandemic is causing huge financial strain on charities across the world. The implications for low-grade serous cancer research are worrisome. Low-grade serous research funding is a scarce resource. The need for targeted funding is critical to avoid delays to new, potentially life-saving treatments.

Research is desperately needed to find treatments to improve survival. Women are seeking to raise funds for the research they need to save their lives. They also want women to be aware of the symptoms of ovarian cancer.

The symptoms of ovarian cancer can be vague or variable. They overlap with other less serious conditions. There is no screening test. Because of this many women go undiagnosed for a prolonged period of time.

Possible symptoms include
-abdominal bloating/swelling
-abdominal/back/pelvic pain
-urinary frequency or urgency
-eating less and feeling fuller
-change in bowel function
-indigestion
-unintentional weight loss
-painful intercourse
-unexplained fatigue
-menstrual irregularities

If the symptoms are new, unusual or worsening and last for more than two weeks it is important to see a doctor. Ovarian cancer is usually detected by a scan, such as an ultrasound or CT, and CA-125 blood test.

Younger women, like those with low-grade serous carcinoma, have an increased risk of delayed diagnosis. Diagnosis at stage I, when the cancer is contained within the ovary, and usually curable, is rare.

There is a pressing need for more research. Rare cancers like low-grade serous account for nearly half of all cancer deaths but receive less than one sixth of all research funding*. The drugs women currently receive are 20 to 40 years old.

Although low-grade serous is frequently incurable once it has spread beyond the ovary (stages II to IV), it is a relatively slow moving killer. More research, sooner, is the key to helping the approximately 100 000 women with the disease. There is a real possibility that with sufficient funding, researchers could find treatments to significantly improve their lives.

Women are asking people to donate through Cure Our Ovarian Cancer (COOC). COOC was established in 2018 by women with low-grade serous carcinoma. They are the only charity dedicated to supporting research on low-grade serous carcinoma. They facilitate donations both directly, and through partner charities. Aside from a small credit card payment fee, all the donations given to COOC go to low-grade serous carcinoma research.

Women hope they can dramatically increase the amount of research. They want to live full and healthy lives. Donations can be made through their website: cureourovariancancer.org

For more information: contact info@cureourovariancancer.org. If you would like to interview a woman with low-grade serous, we will do our best to put you in touch with someone from your country.

* Rare Cancers Australia Baseline Report “A Little More Time” 2016


Tips for dealing with the media


For women with low-grade serous ovarian cancer and their families

  • Regional newspapers, magazines, radio and TV really engage with stories about local people supporting a good cause
  • Local and regional media include: Local newspaper(s)/magazine(s) Local radio station(s) Regional TV news programmes (BBC and ITV)
  • If you send a well-written press release to your local journalist contacts, you will increase the chances of getting your story covered by the local newspaper, radio or TV station.
woman with long hair smiling on the phone

Getting Started

  • Copy down your story and/or the URL and attach a copy of our Press Release.
  • Ring up your local papers/magazines and find out if there is a particular reporter to send your press release to
  • Copy your press release into the body of your email and send it to the relevant contacts
  • It’s a good idea to personalise your message and to include your contact details so they can get in touch with you directly
  • Include any relevant, high quality photographs along with your press release (remember to include the names and ages of people in the photograph, from left to right)
  • Once you have emailed the press release, follow-up with a phone call to make sure the journalist has received it.
  • Ask whether they need any more information from you and whether they are likely to feature your story

Working with local radio stations

  • If you don’t already listen to your local radio stations, tune into different shows so you can hear the sorts of topics the presenters discuss
  • Call your local stations and ask to speak to the producer of the show you’d like to be a guest on
  • Explain your story and ask for their email address so you can send them the press release
  • As well as sending the press release, give details about when you may be free to speak to them.
  • Are you able to go into the studio for a chat or is it easier for you to speak to them over the phone?
  • Once you have sent the press release, follow up with a phone call to check they have received it and to see if they’d like to arrange an interview with you
  • If you are successful in securing media coverage – it’s worth checking to see if they are going to feature your story on their social media page as this is another great way to raise awareness of your fundraising event!

How to be the perfect interviewee

  • Be prepared
  • Re-read your press release – as the interviewer will base questions on this. What are you doing? Why? How can people help you fundraise? Be clear on what you want to achieve
  • Prepare three main points you want to get across during the interview and make sure you mention them
  • Take the initiative if they don’t ask you a particular question you wanted to answer take the lead and say ‘I’d also just like to make these points...’
  • Be confident. Most presenters are friendly! Treat the interview like a chat with a friend about an event you’re excited about
  • Make it relevant
  • Be prompt.
  • If you are doing the interview from a TV or radio studio, make sure you arrive at least ten minutes early

If you have any questions we will do our best to help - contact us

Thank you for your support!

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